Monday, December 29, 2008
Anyway, I'm directing this post to Matt's SGM because he, according to Matt, paid me a compliment that I just cannot ignore. Apparently Matt's SGM expressed his appreciation of my writing skills. I was very encouraged by the compliment and am thrilled to be able to give Matt's boss a detailed account of Matt's where abouts at any given time (SGM found a post stating that Matt went to work at 7:00am, which is normally utterly rediculous since their report time is 8:30. This made SGM question what I was reporting, but, after looking up the date, he found it to be accurate due to it being a deployment training day). lol...
As for the rest of our happenings:
Matt rented a storage unit nearby and we've (okay, so I meant to say that he's) started working on getting our things moved into it. Matt took down our indoor Christmas decorations and has already stored them. Then we (and yes, I actually helped) went through several boxes from the garage. We ended up giving 7 medium-large boxes to Goodwill. They were stuffed full of toys, crafts, clothes and miscellaneous items that we no longer wanted or needed. The idea is to downsize our rather large holdings in order to make future moves more efficient. Besides, there are not going to be too many places that will have a nice sized garage to allow us the space to store all of our junk in our future locations (especially if I get my way and we end up in Hawaii [or even Korea, which is another location I'd really like to live at some point]).
Little Mr. M suprised me this morning. He was playing his Nintendo DS; Brainage, which I bought for myself. I've learned it's quite a unique, fun and interesting way to help M (and C as soon as I teach her) keep up with his addition and subtraction as well as some of his reading. It's been a wonderful introduction to multiplication, too. This morning he ended up reading a portion that I thought he was totally incapable of deciphering by sounding out the words. This is a HUGE accomplishment for M because he has never quite understood how the "sound it out" process worked. He is able to say the sound of each individual letter but isn't able to sound things out fluidly to make the word more coherent. Well... He did just that this morning when he sounded out "blue", "black", "red" and "yellow". I'm so proud of him!
C is still doing marvelously. Her kindergarten teacher mailed a packet home to enable us to work with her on her "DIBELS" test (this is a test that checks how well the kids are learning their phonics). Sadly, it was a wasted envelope, paper, time and effort since she is unable/unqualified to take the DIBELS test. Due to being profoundly deaf she must learn to read via sight words and memorization, which she accomplishes with great skill. I can tell you that she is excessively excited about returning to school. She asks every day when she can get on the bus and go, and I just had to show her on the calendar exactly which day she would be returning. Hhhhmmmmm... Is it me she's tired of or the boredom of being home with Mom all the time?!? LOL!
M, on the other hand, is rather enjoying his newfound freedom. 3 weeks off of school will make anyone feel like they are on summer vacation, even with the snow piled in the backyard (although that's finally nearly gone). I know that's how I feel... And I, too, am ready for them to head back to the drudge of being educated! ;)
Well, things are progressing fast, now... Christmas is over, the decorations are down and we're packing to move. Valentine's day is just around the corner followed shortly by St. Patrick's day. So, it's not long now before we begin the new chapter of our lives.
Wishing you all a Happy New Year!!!
Saturday, December 27, 2008
The weather had been horrendous and we worried about Mom and Dad's travel last weekend. For the preceeding 5 days we had heard about how the "newest system" would "arrive on Sunday". But on Friday afternoon the meteorologist moved the timeframe up to Saturday. Mom and Dad had initially intended on meandering up on Sunday and arriving on Monday, but changed the date to Saturday with the hope of beating the Sunday storm. I phoned as soon as I heard the new forecast, but Mom and Dad were celebrating Christmas with my sister and her family that day so were too distracted to comprehend what I was trying to tell them. So, up they drove on Saturday, hitting the major part of the storm just 20 miles south of Portland.
It took my parents 5-1/2 hours to drive what normally takes 2-1/2 hours because of the massive amounts of snow and ice just swamping the roadways. Wow!!! Needless to say, they were exhausted after their extremely long day. They had woke up around 4:30am, left the house around 5:00am, stopped at my aunts house in Longview for about 40 minutes and arrived here around 10:30pm... What a day!
The kids were just thrilled to see Nana and Papa! They were completely surprised when they came downstairs and found Nana relaxing on the couch. C shadowed Nana for the entire week! My mom, of course, loved every minute of it.
Then came the day for Santa to show up... I kept signing to C that Santa would visit that night and would bring toys. Every time I told her she would get excited all over again. We forgot to have the kids leave out the cookies and milk, but Daddy did it for them. They didn't even notice when they woke up. Oh well. Too busy checking out their gifts, I guess! lol.
M and C had a blast opening their Christmas gifts. Even mom enjoyed herself. She got a new laptop, which my dad had shipped to our house (he gave me a secret code phrase so that I would know when to bring it out, but I forgot and made up my own: "The purple whale spout green algae in the gray grass..." lol). M and C have not put down their new Nintendo DS games (they each got their own). But Mom and I stole them as soon as the kids put them down so we could play "Brainage", which I bought for myself. Hmmm... I may not get any work done around the house... I'm having too much fun with it!
The weather remainded cold and blustery during Mom's and Dad's entire visit this week. But, I think everyone enjoyed the awesome white Christmas. It was a very nice and unique treat for the Seattle area and us!
So, I hope everyone had a beautiful Christmas and will have an awesome New Year. And I sincerely hope the coming year is a peaceful and happy one for all.
Wednesday, December 17, 2008
Sunday, December 14, 2008
The Charlie Schulz Philosophy
(This is marvelous! Scroll thru slowly and read carefully to receive and enjoy full effect)
The following is the philosophy of Charles Schulz, the creator of the 'Peanuts' comic strip.
You don't have to actually answer the questions. Just ponder on them.
Just read the e-mail straight through, and you'll get the point.
1. Name the five wealthiest people in the world.
2. Name the last five Heisman trophy winners.
3. Name the last five winners of the Miss America pageant.
4 Name ten people who have won the Nobel or Pulitzer Prize.
5. Name the last half dozen Academy Award winners for best actor and actress.
6. Name the last decade's worth of World Series winners.
How did you do?
The point is, none of us remember the headliners of yesterday.
These are no second-rate achievers.
They are the best in their fields.
But the applause dies..
Achievements are forgotten.
Accolades and certificates are buried with their owners.
Here's another quiz. See how you do on this one:
1. List a few teachers who aided your journey through school.
2. Name three friends who have helped you through a difficult time.
3. Name five people who have taught you something worthwhile.
4. Think of a few people who have made you feel appreciated and special!!
5. Think of five people you enjoy spending time with.
The people who make a difference in your life are not the ones with the most credentials..
the most money...or the most awards.
They simply are the ones who care the most
Pass this on to those people who have made a difference in your life, like I did.
'Don't worry about the world coming to an end today. It's already tomorrow in Australia !'
''Be Yourself. Everyone Else Is Taken!"
Friday, December 12, 2008
The note (although not verbatim) expressed the teacher's pride M and how well he is paying attention. She states that she has noticed a huge difference in M during these past few weeks in both his behavior and his work. She also said how much of a joy he has been and how thrilled she is that she has been able to be a witness to this magnificent change!
What makes this incident even more spectacular is that this particular teacher was not informed of M's ADHD diagnosis and subsequent medication. To me, this makes it far more clear that the medication is actually helping M in ways that are both profound and highly appreciated.
Sunday, December 7, 2008
Last night, after I put M and C to bed, I went into my bedroom to check my email. In walks M and, passing me by without uttering a single word, walked straight into my bathroom.
"Son, what are you doing?"
"I forgot something, Mommy," M replied softly.
"What did you forget?" I questioned.
"I forgot wash my face."
Ah. The poor guy has horrible skin that seems to be filled with little white heads. He's going to have acne problems as a teenager, I just know it. So, I went on blissfully typing away, letting M do his nightly ritual of cleaning his face, though generally he does it in the downstairs bathroom. That is, until I heard...
"AH!!! Mom, come quick... SANTA CAME ALREADY!!!"
Oh Crap! I forgot I had put all the Santa gifts in my bathroom closet... It's the one place the kids rarely, if ever, get into. DAMN!!! So, of course, I had to go in and play it really cool...
"WOW, Son... Check that out. That's pretty cool. You know, sometimes Santa gets super busy and needs to drop off presents early. He must have left those for Mom to put out later."
"Yeah, can we open them now?"
"No, Buddy. And if you try to open them, then Santa will know about it and might come take them back. We don't want that to happen, now do we?"
Right about this time there is a scream and a definite, "NO!!!"
"Okay, then... Stay out of Mommy's closet, cuz Santa will know if you get into it."
"Yeah, cuz Santa knows everything!!!"
"That's right... Santa knows everything, so stay out of my closet, okay?!?"
So here I sit, telling you all about my terrible error, hoping the entire time that M doesn't show his sister and that he actually follows the directions to stay out of my closet. There are still several things that aren't wrapped, though, thankfully, those were in non-transparent plastic bags. Being the weekend, both kids are still at home so I haven't had an opportunity to move them, yet. I'll be sure to get that done tomorrow. Needless to say, I feel like a complete idot because I should have understood that M was going to get into my bathroom closet to find a washcloth to use on his face. Well, lesson learned!
Hugs to all... And to all a good night! Merry Christmas!
Friday, December 5, 2008
Then, the kids got up and the hectic morning began. Both kids were dressed, had eaten breakfast, gotten their teeth brushed, went potty, had their medications and were ready to get on the bus by 7:25. Matt had left for work by 7:00 and I was relishing the moment of peace I would have once both kids were out the door for school. That is, until I checked my calendar and realized C had a doctor's appointment this morning.
So, I held her back from the bus. And, with tears streaming down her face, she watched Matthew head to school. Poor C was simply crushed! But, she got to go with me this morning to have some blood drawn. She was very empathetic, I can tell you. All the ladies in the lab were watching her reactions rather than dealing with their patients. It was cute!
As we were leaving, though, I had to listen to a man berate and belittle his wife for leaving the area in which he had placed her. He called her stupid and told her (in a ver obnoxious and rude manner) that she was told to wait where he put her. And every time she tried to tell him sorry, he'd tell her how stupid she had been to leave. It got so nasty that I actually turned around and glared at them, not that "Dan" noticed (and, yes, that is his real name... At least, that's what the wife called him). I wanted to knock that man flat on his face! I couldn't believe he was talking to his wife like that in public. I could only imagine what he did to her in the privacy of their own home. Scary. But what was really scary was the thought that they might have had children who were witness to this treatment. Thank God my daughter is deaf because I would not have wanted her to hear this abusive man. I actually pushed C to the side of the hall so that we didn't have to walk near this couple anymore. I was seriously afraid that that man was going to haul off and hit his wife. It reminded me clearly of someone else I know (and I'm not talking about my beloved hubby, just in case anyone was wondering. My guy is an amazingly patient man with me. I have a temper from Hades and Matt is my calming entity).
In any case, my day ended on a fabulous note: Mr. M came home from school with a "CONGRATULATIONS, You passed Chapter 11" note from his reading teacher!!! We were thrilled because it has been several months since he's brought home a passing grade from his reading class! It was fabulous. Plus, M has earned another day at Chuck E Cheese!
Also, I've gotten some great advice regarding M's sleeping pattern due to the Adderall XR... Thank you so much for the thoughts. M has been sleeping much better these last few days and I think he's finally getting used to the meds. Hopefully this pattern will continue and we won't need additional help through further medications. But, I've saved all the emails I've received (and will continue to save them) for future reference... You never know when you need the advice, which is always helpful! ;) Thank you!!!
Tuesday, December 2, 2008
M's Self Portrait:
Anyway, since Matt was still off of work and the kids were at school we decided to do the last bit of our Christmas shopping... I think it went very well! We got it all done today, so I can't ask for more!
A few of the things we picked up were:
Storm Trooper voice changing helmet
Easy Bake Oven
Drawing Station that actually prints the pictures the kids draw
3 Jammies for each of the kids
A brush and hair bows for C
Starwars action figures for M
The list goes on but they were smaller things that we can easily take with us when we move into my parents' guest house. Matt and I had loads of fun shopping for the kids. The best thing is that we had a list of things that we wanted to get for them and we actually stuck to it rather than window shopped. Honestly, we only bought the kids each 1 additional item that we did not initially have on our list. And, each of the kids only got 5 main gifts (not including their jammies) and several smaller stocking stuffer type gifts (including the action figures and hair accessories). I'm so proud of myself for not going overboard!!! ;)
Sunday, November 30, 2008
* Installed a new gas heater (it looks like a fireplace... And it looks fabulous)
* Installed a screen door (to help ventilate the house during those horrendously hot summer months)
* Replaced the screens on most of the windows
* Set up the kids' bunk bed
* Brought down my grandfather's daybed and trundle for my use in the living room (it will double as our couch)
* Removed the full sized bed that was being stored there for a family friend so the kids and I would have more room
* Helped me clean the space and organize the house a bit
I fully admit that they did a fabulous job on the entire project! The only things left for me to do when I return next March is to replace one of the steps that have rotted out (so the kids and I don't slip and fall) and clean and organize just a tad more. Dad said he will face the fireplace surround (which didn't get completed while we were home due to a time constraint). Matt helped Pop install the heater, which was Pop's domain, but otherwise completed many of the projects on his own.
Thansgiving day was wonderful, although M was sick for the first few days we were down there (as usual; he seems to get sick every time we go there, poor guy). The only ones missing were my brother and his family and my grandmother. Otherwise it, too, was fabulous. My mom had most of the food prepared before we arrived, which left much of the time open for me to help clean, organize and inventory the guest house (a blessing, for sure). The guestlist comprised of Grandpa, Nonno and his girlfriend, Barbara, Mom and Pop, my sister, her fiance and their 3 children along with her sister-in-law, and me, Matt and our 2 kiddos. Dinner included (as my niece and nephew say) my mom's "World Famous Noodles" (homemade egg noodles), turkey and ham that my dad b-b-q'ed, olives (that my dad grew, cooked and marinated himself... Oh they are yummy) and an assortment of other goodies for condiments, mashed potatoes, stuffing, homemade rolls, and an amazing green bean dish that was laced with sliced almonds. There was too much food placed on the table along with desert for me to remember each and every dish. Needless to say... Our Thanksgiving was spectacular and was especially nice since it will be Matt's last before he returns from his deployment in 2010.
We drove home on Saturday morning. We enjoyed a farewell breakfast at our local restaraunt at 8:30 and were headed north by 9:30. It was a later start than we had hoped for, but it was worth the extra time spent there. Our drive was quiet and took only 13 hours and included all our gas, food, and bathroom stops. I didn't drive much (just 3 or 4 hours at the most) and ended up falling asleep around 8:00. I did wake up again around 9:00 but was way too groggy to help Matt drive those last 2 1/2 hours. I did talk to him every once in a while, though! lol!!!
This morning found me up around 5:30 with M following me down an hour later. Poor Matt woke up just after C did around 7:30-8:00. I didn't have anything in the house for breakfast, so off to McD's Matt went.
After breakfast we sent the kids upstairs to play and watch TV so Matt and I could get our house reorganized and prepared for our Christmas decorations. We even had enough time to pull the Christmas stuff out and set most of it up. We'll finish things up tomorrow and will get pictures posted!!! Can't wait to show everything off, cuz it looks great (even if I do say so myself). We actually had our neighbors all out at one time or another just to see our progress throughout the day... It was fun!
Hope you all had as wonderful a week as we had... HAPPY THANKSGIVING!!!
Tuesday, November 18, 2008
C actually slept ALL night. She fell asleep around 6:30 last night and didn't wake up until 6:30 this morning... What a relief after the last few weeks of sleeplessness. The poor thing was so tired that when Matt woke her up and sent her to bed she was actually sleep walking. We figured this out because she stumbled on the stairs on her way up and as I bent over to help her get up I noticed her eyes were closed... Plus, she was snoring! My poor angel has had such a hard time sleeping lately, so she really needed this.
Then, to top off my day, I just received an email from M's reading teacher about his performance in her class this morning. Since M was diagnosed with ADHD in late August I've been adamant about not medicating him. But, the drastic improvements in M's self confidence and school performance has proved that medication may not be all bad. In fact, in M's case it has become a miracle drug. M's nearly daily pronouncement is, "Mommy... I was a good boy. I focussed today!" In addition to all the positives that have been happening at school with his work he is also having better communication with friends both at school and at home. What a miracle this medication has been for M!!!
The email I received from M's reading teacher: "Just an FYI....M Rocks! He did a great job of staying on task, reading aloud, and working on his decoding pages! This was a truly great day!"
Update: At 1:10 this afternoon I got a call from M's Reading Para (Teacher's Assistant)/ELL Teacher. She initially called to let me know that the school may have placed M in the ELL class (English Language Learner Class) unofficially. I kind of thought that was the case, but really wanted to give him every opportunity to learn to speak more fluently so we agreed to allow him in the class. But, the teacher called to let me know that this may be an unauthorized placement, which means he would have to be removed. But, while she was on the phone, she told me how impressed she was with M's recent improvements. She was just stunned at M's reading ability today. In fact, she thought that M had been getting extra help at home... That's how well he did today. I had to tell her that though M does get extra reading and math help at home, he hasn't gotten any more than usual. I think the medication is finally helping M to concentrate and focuss enough to learn!!! More importantly, I think M will be getting a special treat today for doing so well... If he did well enough that two seperate teachers contacted me with his impressive improvement then he definitely deserves a treat (and C will get one for sleeping so well, too)!!!
Children from China.
For all purchases at Barnes and Noble on Sunday, December 7, at any or
their stores nationwide, a percentage of all sales will go to FCC
(Families with Children from China). This organization does a lot of
wonderful work for the children of China and the orphanages are a huge
part of their work.
Please mention code 428490 when you make a purchase on Sunday, December
7 at any Barnes and Noble Bookstore. This does NOT apply to on line
orders but DOES apply to orders made over the phone and mailed to you.
Board of Directors
Sunday, November 16, 2008
Here's the deal we made with M:
Each day M draws happy faces on the white board representing all the positive feedback he got from his teachers for the day. The goal is to show him that positive behaviors get rewards in the hopes that it will encourage him to have better days at school.
At the end of each week we tally up all the happy faces. If M received 10 - 19 happy faces then he gets to go with Daddy to get an ice cream cone! If he gets 20 (average is 4/day) or more happy faces then he gets treated to Chuck E Cheese's!!! Since starting this idea more than a month ago, M has gotten to have ice cream twice now, but he had not achieved the ultimate goal of Chuck E Cheese's.
This week was a touch different because it was parent/teacher conference week so Wednesday, Thursday and Friday he only attended school from 8:00 to 11:30. Plus, there was no school on Tuesday in recognition of Veterans' Day. So, we didn't make him achieve 20. Rather, we asked him to get 14 happy faces (which would have equated to 24 for a regular week; this seemed to be a nearly impossible request considering he had yet to meet the standard to go to Chuck E Cheese).
M actually got 5 happy faces on Monday, 4 on Wednesday, 4 on Thursday and 4 on Friday!!! He performed so well this week that he surpassed what we asked him to do by 3 happy faces!
So, off we went to Chuck E Cheese... And boy did we all have fun. We actually allowed both kids to meander around by themselves; we chose a table with a view of the entire place so we could keep an eye on them, of course, but they got to feel like big kids. M especially deserved the treat and was allowed to enjoy himself to the extreme!!! What a reward!!! I hope he can do it again!!! (Above are the front and back of the cards M and C each made while we were there.)
Tuesday, November 4, 2008
"M had a good day in reading today...another boy cut in front of him in line at the end of class...he just said to him hay you cut me....no screaming no yelling....it was a big change for him. GO M!"
Monday, November 3, 2008
Saturday we packed the kids into the van and were just pulling out of the driveway when Matt's SGM phone needing some assistance for another soldier, which happens to be a vital part of Matt's job. So we unpacked the kids and off Matt went to assist the soldier in his emergency. By the time Matt arrived home it was far too late to head down south, so we stayed home and took down the Halloween decorations (thanks so much Ma).
Sunday we reloaded up the kids and headed north to go to IKEA. We only needed that one item, but one must walk the entire store to get to the checkout (or even find what you are looking for). There really are no short-cuts, which is a great way to encourage people to buy more during those impulse but moments. Unfortunately, they were still out of the day bed that I want. This actually was a blessing in disguise because I can order it online and have it shipped directly to my parents house (that will be our couch and my bed while we're living there during Matt's deployment; then it will become C's bed and a guest bed since it can expand to a king-sized element).
Since we rushed through IKEA and were finished with it with ample time to have a decent visit with everyone at Aunt D's house we decided to take the long drive down. We made it about an hour from our house when the van started acting funny. It was kind of scary because neither Matt nor I knew what was what. Thankfully, we were just coming up on an exit, so we pulled off the road. Matt put the van in park and revved the engine a bit. The van sounded and felt perfectly normal. But, just in case, we decided to head home. Matt put the van into drive and began pulling out onto the road. Sadly, the van didn't want to cooperate... It refused to leave 1st gear. So, we puttered across the overpass to the 76 station and called our insurance company for help and called Aunt D to let her know what we were doing.
We waited about an hour for a tow truck and Aunt D pulled in just before he arrived to take us to the car rental place. The gentleman who owned the rental shop was an angel. His was the only rental agency in the entire area and he was closed on Sundays. But he answered his phone and agreed to help out a soldier in need... I cannoth thank him enough!!!
Our van was towed to the local Mazda dealership. The poor specialist worked on it all day and is completely stumped as to what is causing the problem (or even what the problem seems to be). Hopefully we'll find out more tomorrow.
We truly thought our weekend was bad, but our friend's weekend was even worse... He has experienced identity theft... It can happen to all of us, so be careful!!!
Saturday, November 1, 2008
Poor M has been dealing with what seems to be an asthma attack that started late Tuesday evening. On Wednesday his asthma flared up dramatically and we've been fighting it like crazy cakes since then. He's finally getting better (I can tell a huge difference today). We didn't allow M to go outside and play since Tuesday so that we could get him over this attack swifter in the hopes of having a good night for Halloween. He still wasn't remotely up to par but was able to breathe enough to walk door to door.
Matt and I conned one of the "single soldiers" (a married Sergeant Major whose family is still residing at his previous duty station) to come to our house to pass out candy while Matt and I took the kids out trick-or-treating. His payment was a homecooked meal!
M dressed up as Obe-won-kanobe (sorry about the spelling) while C dressed up as a little witch. I had fun helping her get ready because she let me put make-up on her... She looked great and the first family we passed let us know that she looked pretty awesome!
The kids walked for four blocks during which time their baskets became about 1/2 filled. On post there are specific times that you may go out trick-or-treating: 6:00 - 8:00. We didn't even come close to utilizing that entire time! The kids had fun for about an hour. C started getting worn out and was ready to go home just 45 minutes after we left the house; in fact, Daddy had to carry her nearly the entire return trip. She began the journey with GREAT excitement (though not nearly as much as M). I think she used all of her energy too early in the night.
Wednesday, October 29, 2008
Monday I had to see a geneticist who told me that I am a Cystic Fibrosis carrier. 1 in every 25 caucasians of European decent are carriers of this desease. That took all of 3 minutes for him to tell me that as a carrier I am not effected at all by the disease. Wow! I could have gone the rest of my life without wasting that 3 minutes of my day! Then, around 11:00, I received a phone call from the school secretary asking me to come take care of M... He got a step 4 in the lunch line because he hit a child who was standing too close to him. Then, he called the lunch room teacher a "Liar" when she called him on it (she had watched him do it). So, I had to meet the teacher and took M home for a bit of homeschooling, which is something he dislikes, as punishment.
Tuesday I had an appointment with M's behavioral therapist at 8:00 in the morning and a meeting with C's principal to address some issues with her deaf/HoH teacher. Matt and I had stayed up talking until nearly midnight the previous night about both M's appointment with this particular physician and C's school possibilities. The therapist doesn't work with M. Rather, she sees Matt and I to "tweak" our parenting skills. In fact, she has claimed on more than one visit that she doesn't know why we're seeing her because we're doing everything right. In regards to C's teacher... She had sent home notes about my daughter that I didn't appreciate 3 days in a row. She was critiquing my ability to send C to school with a full battery for her Cochlear Processor (an insult to any responsible mother) and claimed that C was having behavior problems associated with the inoperable state of her processor. A complete fabrication, even if I do say so myself. The teacher and the entire deaf/HoH team and I utterly disagree on what is an appopriate learning situation for C, which, in turn, causes us to be sensitive towards each other and what each has to say.
Here's what actually happened: Matt went to the behavioral health therapist and told her our opinion. He explained that we only really wanted a confirmed diagnosis for M so that he can get the additional help from school that he would qualify for. She totally understood and was utterly appreciative that we were considerate enough to keep our appointment and tell her in person of our viewpoint (I, in fact, came across her today and she was super sweet). We then cancelled our appointment with the principal and said we'd work it out with the teacher first. If things escalate then we'll go through the pricinipal. I just got tired of this woman being so adamant about how I should raise my deaf daughter (just because she is a deaf woman herself) that I wanted to take action. Sadly, the day got worse!!! M's reading teacher called me and asked if I would come sit with M. He, apparently, decided not to do his school work. He had done the same thing on Monday, too. But, she simply had to do something to ensure his work got done. So, off I rushed to the school (after calling Matt to get the van) to sit with M. He DID NOT like this treatment and I can only hope that he has learned a valuable lesson. I can tell you that I did not make this pleasant. Upon arriving home I found I had received a call from M's Developmental Pediatrician, whom I was supposed to call at 9:30 but didn't have an opportunity because of my time spent at the school. I called her back and we discussed Matt's conversation with the behavioral therapist and our desire to get M the help he needed, even if it meant putting him on ADHD meds (that's the official diagnosis).
Once the kids arrived home from school we went to the pharmacy (on post the wait is usually an hour to an hour and a half). We arrived around 3:45 and left around 4:45. I had some coloring/activity books and crayons along with some playdough and snacks and juice. The kids (both of them) actually sat quietly for then entire time!!! I was so PROUD of them... It was a difficult task for any child and excessively so for M! What a trooper! They did so well we treated them to dinner and an extra desert. We picked up M's ADHD medicine (10mg of Adderall XR) and gathered the instructions for things to watch for (positive and negative) to be implimented the following moring.
Wednesday has been just as busy. I started my day with explaining to M about his medication before shipping him off to school. C and I took Matt to work before coming home to get ready for her Developmental Pediatrician visit. In our visit I explained the new school situation. To say that the two doctors who were seeing C today were not pleased at her situation is a severe understatement. In fact, they've determined that if we cannot get C into her old school with like-hearing peers that they wanted to get her seen by a signing therapist so she can learn to express herself. They are VERY anxious about C's social skills and mental health because of this placement. They strongly feel she is being isolated at a stage when she really needs to further her communication skills and can truly benefit from socializing with other deaf children. They were especially adamant about this when they learned that she cannot even recognize the sound of her own name using the Cochlear Implant. Plus, poor C had to have her final Hep B shot. Her previous series she got in China did not "take", according to her Titers, so we had to start over again with this. Then, while we were there, they gave her the nasal flu vaccine. Needless to say, I kept her home today.
After today's visit I'm feeling frustrated again... I can't provide transportation for C and the school refuses since they already have a program in our own school, but if I can arrange transportation for the old school then M will have to move schools, too, just when we're getting to a point that he NEEDS to stay where he is to verify how the new medication is effecting him. Not fun at all!
Here's what M's teachers said about M's behavior today:
"Hello!He had a pretty good day today.He had a little bit of a hard time getting settled at the school wideassembly.But, that was quickly resolved and we moved on."
"His behavior and academic performance was not as good as it has been but better than the last two days... he seemed "sullen" sad and mad at the same time. He did what we asked but not with real effort or excitement. Mrs. ____ gave him compliments on his word cards, I thought I almost seen a smile but it was fleeting. May be the review this week will help. Full week of reading next week! Thank you for coming in. I really appreciate it!"
Monday, October 27, 2008
And the list just keeps on going! You are loved and missed so dearly! We'll see you again in the future.
And for my family and friends who have been touched by cancer but have survived... You are an inspiration! May you always win this fight:
And so many others!
All you are asked to do is keep this circulating, even if it's to one more person.
In memory of anyone you know that has been struck by cancer.
A Candle Loses Nothing By Lighting Another Candle.
Please Keep These Candles Going!
Sunday, October 26, 2008
Today, we were planning on taking a drive down to Aunt D and Uncle C's house in south-western Washington. It can be nearly a 2 hour trip, depending on weather. But, I started my girl days on Friday and found myself in a bit of pain. Apparently, the polyps that the doctor removed back in September finally decided to dislodge themselves. This excretion process is quite painful. Like my cycles weren't painful enough... I now have to deal with even further pain. Apparently, in a few months I should be loving life with far less pain. If this doesn't work we'll be aiming at a hystorectomy... Wonder if I can talk the doc into that in a year or two?!? Hmmm... Worth thinkin' 'bout! ;)
Anyway, this afternoon I finally started feeling the pain go away. I began waking up at around 2:00, so we decided to take a quick run to the store (fighting the pain was wearing me out enough that I practically slept the weekend away). I needed to buy Halloween Candy (I'm a stickler for buy and giving out candy if my kids are trick-or-treating) and M and C needed some new jeans.
I purchased 3 pairs of 7 slim pants and 2 pairs of 8 slim pants for M and little "tight" outfits for C (the kind with long dress-like shorts with matching tights underneath) in lieu of jeans. M had 2 pairs of 7 slim pants from late last year and C had several jeans that still fit (though quite snuggly). So, we went to Ross and found a great deal on jeans for both the kids. I ended up buying C 3 pairs of designer jeans for $9.00 each while M got 3 pairs of desiner jeans for $10.00 each. He got 2 more pairs from Target for $10.00 each, also. It was a fabulous find because it is always so difficult to find slim sized pants at all, never-the-less at Ross. M is simply too tall... He's lanky, super skinny and long legged like a little colt (knobby knees and all). Hopefully these pants will last both the kids through spring!!!
So, how can I get away with saying I bought clothes other than for the kids? Easy... Ross was having a decent clearance section where I was able to buy my nephews so great clothes!!! Plus, I bought myself 3 new bras! I have 1 bra that is comfy and I pull the wash and wear every day routine with it. My other 3 bras are awkward and mostly uncomfortable. We'll see how well these new bras work. I don't care what a bra looks like as long as it is confortable and holds up my girl parts! ;)
Needless to say, I was thrilled with my finds but was totally worn out by the time we got back to the van. I should have waited to do my shopping until I felt better... Like on Wednesday.
Saturday, October 25, 2008
I found my dream kitchen. It's by IKEA and I saw it while we were visiting the IKEA store in Seattle when my friend from Texas was visiting earlier this month. These pictures don't show it's true beauty by any means, but at least you'll have an idea. For those of you who have seen my kitchen in my house in Kansas you'll know just how beautiful this design could look. It's somewhat country with lots of elegance! The backsplash emulates pounded tin (it's actually a plastic of some kind). I think the backsplash in this kitchen could look great if it were done with black chalkboard paint. The the top/tall cabinets are white, some are glass fronted while others are fronted with wainscoating. The lower/base cabinets are a dark stained wood. There is a breakfast island in the center of the layout with some open storage underneath. The sink is a country sink with a fabulous country faucet that reminds me of a hose. It's so cool and this kitchen is unbeatable!
Wednesday, October 22, 2008
( ) Gone on a blind date
(X) Skipped school
(X) Watched someone die
( ) Been to Canada
( ) Been to Mexico
(X) Been to Florida
(X) Been on a plane
(X) Been lost
(X) Been on the opposite side of the country
(X) Gone to Washington , DC
(X) Swam in the ocean
(X) Cried yourself to sleep
(X) Played cops and robber
(X) Recently colored with crayons
( ) Sang Karaoke
(X) Paid for a meal with coins only?
(X) Done something you told yourself you wouldn't?
(X) Made prank phone calls (Does that count to family/friends? Then Yes.)
(X) Laughed until some kind of beverage came out of your nose or peed your pants
(X) Caught a snowflake on your tongue
(X) Danced in the rain
(X) Written a letter to Santa Claus
(X) Been kissed under the mistletoe
(X) Watched the sunrise with someone
(X) Blown bubbles
(X) Gone ice-skating
( ) Been skinny dipping outdoors
(X) Gone to the movies
1. Any nickname?
2. Mother's name?
3. Favorite drink?
Anything with Chocolate
4. Body Piercings?
My ears and belly-button
5. How much do you love your job?
I adore my job... I get to be a mom!!!
7. Favorite vacation spot?
My family's traditional annual camping trip to the Northern California Coast.
8. Ever been to Africa?
No, but I sincerely hope to get there some day (we hope to adopt from Ethiopia)!
9. Ever eaten just cookies for dinner?
10. Ever been on TV?
Yes; Matt and I were in a commercial at Ft. Eustis. I sucked but Matt was great.
11. Ever steal any traffic signs??
12. Ever been in a car accident?
13. Drive a 2-door or 4-door vehicle?
Both at some point in my driving career.
14. Can you drive a standard car?
Yes... My parents required us to learn on a stick shift. My dad's philosophy is if you can drive a stick you can drive anything... And it turned out to be very true since I've also driven an 18-wheeler.
15. Favorite pie?
16. Favorite number?
17. Favorite movie?
Sense and Sensibility
18. Favorite holiday?
19. Favorite dessert?
Do I have to pick just one?!?
20. Favorite food?
Pasta, especially spaghetti
21. Favorite day of the week?
Friday... Because that's the last day of work and school so I can have my family all together for the weekend!
22. Favorite brand of body wash?
23. Favorite toothpaste ?
Aquafresh Extreme Clean
24. Favorite smell?
Johnson and Johnson Baby Shampoo
25. How do you relax?
Sitting in my parents front yard with a glass of wine or a bottle of beer and being able to chill with them.
26. How do you see yourself in 10 years?
As the mother of numerous healthy, happy and well adjusted children (grandchildren to follow) and the wife of an awesome (and hopefully retired) soldier!
27. Furthest place you will send this message?
Around The World!
28. What is your favorite breed of dog?
German Shephards (but I also like Dobermans, Giant Schnauzers, American Mastiffs and Labs)
29. Favorite sound?
My children's laughter
Thursday, October 16, 2008
So, after taking a deep breath we have decided to impliment some strategies at home to help him learn to read better. At the end of last year of kindergarten we had withdrawn M and began homeschooling him. We utilized the k12 program (an awesome program that is perfect for inexperienced home educators like myself). Even though M had attended a regular kindergarten through last February k12 required him to start over. So, we got many wonderful supplies to help educate M, about 1/2 of which we did not have to return. One of the things we were able to keep was the Phonics workbook and teacher's book. So, we're going to pull that back out and use it to give M extra education on Saturdays and Sundays.
Wish us and M lots luck!
Tuesday, October 14, 2008
This past weekend was a blast. We hosted a long time friend for a few days. She flew in from Texas and brought the kids each a ton of stuff (she spoils them rotten). The kids, Matt and I all enjoyed having her. We went to Mt. St. Helens and saw it smoking and then we went to Seattle to check out Pike's Market. While we were there we took the short cruise around Puget Sound. That was really nice. We saw some California Sea Lions while we were out cruising along with a few jelly fish. They were huge! I was the only one interested in the jelly fish while everyone else were checking out the Sea Lions, which were pretty cool, too. I thought I saw a few whales surfacing, but since I was the only one seeing these few surfaces I must have been imagining things (though there are a pod of Orcas in the vacinity as well as Humbacks that have swum up the canal and reached Tacoma, two arrived and departed just two months ago, so it's not impossible). "K" brought the kids a lot of things from Tombstone, Arizona as well as Texas. Pictured here are M and C wearing their authentic cowboy attire from Tombstone (we'll have to have professional pics done, too).
Thursday, October 9, 2008
M asked, "Mom, how you write 'Dear Mom, I miss you'?"
"What for, Son," I asked?
"How you write it? I want to write it for my mom." Showing me his paper I finally figured out what he had done and wanted to do...
M had drawn a picture of his biological mother holding him as an infant, wrapped in a blanket. He had made this picture just for her. Nearly in tears, I walked him through the sentence. When we were done, he asked me to write the following:
"To: Biological Mom
remember (he meant that he hopes she remembers him and holding him)"
10-10-08 (though he didn't request it, I wrote the date)
Once we were finished he picked up the paper and made a beeline for the front door. When I asked him where he was headed he firmly told me, "To send off my letter."
I asked, "You mean you want to send it in the air so the wind takes it to your biological mom?"
"Yes!" he emphatically affirmed.
"Son, why don't you let Mommy do that for you. You can stay inside and finish coloring your picture for Aunt Kim-Berly and Uncle Tracy."
Thankfully he allowed me to do this. Unfortunately, as soon as I finished sending it off in the wind (a.k.a. sticking it into my back pocket) he freaked out and begged for it back. This made me a bit concerned, but I swiftly took it out of my pocket and handed it to him, claiming that it had only gone as far as our neighbor's house. He had decided to wait until he was 18 to give it to her.
Throughout the past 3 years or so (since beginning the adoption process for C) M has been very curious about his birth mom. He's wanted to find her and track her down on occassion. So, we've had to explain to him that we cannot legally look for her until he is 18 years old, at which point we will emphatically help him search for her. Though he doesn't like that answer, he accepts it. I think he recalled what we've told him and changed his mind about sending the paper (which is shown here).
Tuesday, October 7, 2008
Allow me to express the problems with this for my daughter:
C is profoundly deaf. She was implanted with a Cochlear Implant at nearly 5 years old (it is believed that children tend to loose the ability to "learn to hear" at this age). C's implant has not worked as they had hoped and she generally cannot hear people speaking. In addition, C only started learning to communicate through sign when she came home from China nearly 2 years ago (has it really been that long?). Prior to that she moaned, cried and pointed until she got what she wanted. She would squat to indicate she had to go potty, but that was the only form of communication she knew. She was never around nor had ever been introduced to other deaf persons/culture.
When we moved up here to Washington, she was placed in a deaf/HoH program that taught a significant part of their class using ASL (for reading they used SEE [Signed Exact English]). There were 13 additional deaf students within her own age range that she got to interact with every day. She just blossomed and her communication skills took off. So, I've been fighting to get her back into that program, since it was practically written with her in mind! The teacher is deaf, the para's are all deaf and the rest of the team all are family members of a deaf person (either sibling, parent or son/daughter of a deaf person).
Unfortunately, I am stuck between a rock and a hard place with C's situation. Our school district will release C to go to this previous school but will not provide transportation. Since we only have 1 vehicle I cannot even fathom being able to provide transportation for C. As it is, I have to walk to the bus stop every afternoon to pick them up. And this past week has been a wet walk. I'd gladly drive down to pick them up if it were feasible for us to purchase a second car, in which case I'd drive C to the better school.
Well, at least the deaf/HoH specialist is attempting to work with me. He's actually going to the School For The Deaf to observe and get advice on deaf culture, with C specifically in mind. Sadly, I am the only parent (out of 8 parents) who is interested in giving my child these important socialization and communication skills. And, thankfully, when we move again we'll be able to bring Matt's Jeep as a second vehicle (it's an old classic that he's been having restored to some degree. With his deployment I'm planning on using some of the savings to buy a new engine to ensure it is able to do the job of transporting him safely. He loves his Jeep so much that he'll never get rid of it... So, might as well make it safer). This will allow me to tell the current school to take a bite and drive C to school!
Whew... The luxury of having special need kiddos!
So, in the hopes of getting our son the additional help he needs with his reading, we've taken him to Sylvan Learning Center. He was evaluated this morning during a two-hour block of testing. We'll get his results on Thursday, which is when they'll also tell us what hours and days of the week they think they'll need to work with him to get him up to par in reading. The cost for the evaluation was $145 and the enrollment fee was $55, but during October they're having a special of $94 instead! The cost per hour for the tutoring is $43 - $47. I might actually have to get a job to help pay for the tutoring! (Yikes... What am I thinking? lol)
The reason we went with Sylvan Learning Center is because they have guaranteed their work with M and they have centers located across the country in almost every location we would be stationed, making accessibility a bonus (they even have one in the really tiny town we're moving to next year). Plus, his information can be transfered to any of the other locations and the enrollment is lifetime!
I hope this works miracles!
Monday, October 6, 2008
After learning about the conference from Ms. J's blog, I tracked down the leading organization. It never dawned on me before reading her blog that there was support available for our son and our family. The National Alliance For Drug Endangered Children (http://www.nationaldec.org/) is an organization that helps to educate families, caregivers and volunteers as well as providing support and connection to state programs to assist children who have been exposed to drugs through biological parental use, distribution and/or manufacturing.
What is truly amazing is that I simply started to feel the need to express my concern for these children on my blog and the next thing I know I'm being connected to resources that I never knew were available. Isn't it amazing how we're almost guided in important directions?
Sunday, October 5, 2008
Here's our story:
M came home to us in September 2002 from an 8 day stay in the hospital due to pneumonia. He was only 2-months-old at the time and was the first of many bouts with this deadly disease (which the prenatal drug exposure may have been a contributing factor). His first foster placement had fallen through; who knows why the family gave up on him, but we got a first hand show of one possibility. The first night M was home his breathing and actions were typical of any sick baby. He was quiet and sleepy but needed lots of antibiotics to continue treating the pneumonia. The second day we actually rushed him back to the emergency room because his lips turned blue and his fingers began changing colors from a lack of oxygen. We spent the following 5 days in the hospital, never leaving his side. During that time M had test after test on his heart. They diagnosed him with Astham and found a heart murmur (which he still has) while examining what appeared to be a misshapen heart. In reality, his lungs were so full of fluid that they were squeezing M's heart into an "S" shape.
During the months that followed, we were treated to the realities of a child who was prenatally exposed to drugs. A shrill scream that sounded as if someone was stabbing him over and over again with a large, sharp knife for an average of 2 hours per night was our regular routine. It was scary for us and for our son, especially since nobody understood what was happening. Family and friends thought we were simply inexperienced parents who were overwhelmed with the normal fussings of a baby. What they didn't understand was that he was experiencing withdrawals, and they were terrifying. His reactions to loud, sudden noises was non-exhistent, making him seem deaf. And he never mumbled or cooed as a normal infant would. To this day we continue to see Autism-like symptoms, many of which doctors and physicians don't know how to diagnose because they don't "fit" into place like true Autism.
Over the years, M has had Occupational Therapists, Speech Therapists and Behavior Therapists, but it was often only after a large battle with pediatricians that he was evaluated. His developmental skills were "scattered" making it difficult to show M's needs "on paper", though they were clearly displayed in his day to day life.
"Scattered" development means that he performs at/above age level in some areas while performing below age level in other areas. For example: when he was 5 months old, he could sit by himself but could not use his arms to push himself up; when he was 7 months old he was walking with assistance but could not crawl; when he turned 12 months old M could crawl but could not walk by himself. The pattern is always unusual and has not ceased as he has gotten older. In fact, the developmental difficulties are quite different, though very noticeable when compared to his peers.
His language skills are so poor that he was recently offered to attend the ELL (English Language Learner) program. This program is designed for children whose primary language is other than English and they attend this program to learn English more fluently. M was raised with the English language, but his skills are such that he is severely lacking in language. He uses what he does know quite well, but his vocabulary is limited. I continue to "interpret" for him to family and friends.
Behavior has always been the biggest issue for M. People see him as a brat who throws tantrums. What most people find hard to understand is that M is actually doing very well for the things that he has had to overcome in his little life. The tantrums that he does throw are miniscule compared to what they have been in the past. He tries excessively hard to reign himself in and succeeds to such a degree that anyone would be amazed at the changes had they known him as a 2-year-old. Unfortunately, because others do not understand why he behaves in this manner, they find it hard to accept him and acknowledge that his difficulties are drug-induced rather than a personal choice. And it is excessively difficult for me to be able to explain why M does these things because most people tend to believe that he behaves this way because I allow it. They refuse to see the true reason.
It is not M's personal desire to behave this way, but a drug-induced need to lash out, to explode, in an emotional outburst that would drain even the most patient person. When he is finally able to pull himself together he expresses deep sorrow at how he has behaved. His reactions are the same reactions I have seen from people with Epilepsy: apologetic, regretful, and fearful that he could not control himself.
The things that we deal with daily are things that could have been prevented had his birth-mom not done drugs. Oh, I firmly believe that drugs are a disease, an illness that cannot be controlled. And I absolutely believe that M's birth-mom abandoned him at the hospital when he was born out of pure love. I honestly feel that she loved her son enough to want him to have a better life than she could have provided for him, and I love her for that. But I also see the effects her actions have had on my son.
M suffers every day from the drugs he was exposed to prenatally. He has no friends, he cannot tollerate change, he has a severe language delay, he has a learning disorder in reading, he has uncontrollable tantrums, he has asthma and will always be suseptible to pneumonia and broncchial diseases and M will most likely always have his heart murmur (thankfully it is not life threatening). M was recently diagnosed with ADHD, which scientists have attributed as factor of drug use. And, sadly, for the rest of his life, between the prenatal drug exposure and his ADHD, M will have to fight the strong desire to use drugs. Every single day Matt, M and I fight the effects drugs have had, and continue to have, while fighting the stigma that has been placed on him for behavior that the public simply does not comprehend (my beloved and understanding parents were among this group until they researched the realities of a drug exposed infant; now they are among M's strongest supporters).
So, who do drugs hurt? MY SON! They've hurt him far more than most people will ever be able to truly understand.
This was an extremely difficult and emotional piece for me to write. It brought forth many of the things we have experienced and what little people are able to understand and accept about our son. With each word a tear fell as I remembered each agonizing goal that M achieved. I hope and pray that this gives birth mothers the courage to stop using drugs while they are pregnant and gives adoptive/foster families the courage to step forward to love and raise these amazing children who deserve to have a loving and caring family.
Saturday, October 4, 2008
http://www.crystalrecovery.com/GoAskAlice/GoAA.html?_top=G-PreNatalMeth.html (What follows was copied from this site.)
Pre-Natal Meth Exposure
I was clean from meth for 6 months and started using again. I am now 7 months pregnant what can this do to my baby?
Alice's Answer: Methamphetamine use during pregnancy is believed to place the unborn fetus at risk. Methamphetamine causes increased maternal blood pressure and heart rate, which can result in premature delivery or spontaneous abortion. The drug also constricts blood vessels in the placenta that feed the fetus which results in reduced blood flow to the fetus and ultimately reduced oxygen and nutrient supply. It is known that methamphetamine passes through the placenta that feeds the fetus and can cause elevated fetal blood pressure potential leading to prenatal strokes, heart or other major organ damage. It can also cause an increased or extremely variable heart rate in the fetus and slowing or alteration of fetal growth.
Fetal development abnormalities have been described sporadically in the medical literature but no true syndrome specifically linked with maternal use of methamphetamine use in the prenatal period has been described. Fetuses exposed in utero have been shown to have central nervous system abnormalities, cardiovascular system abnormalities, intestinal abnormalities, urogenital system abnormalities, and malformations of the extremities. However, though these results are very suspicious and highly suggestive of the involvement of methamphetamine use, the direct link between fetal abnormalities and maternal methamphetamine use is not clearly discernable.
With the exception of any major organ system damage or permanent vessel damage, birth outcomes are felt to improve if the mother stops using the drug in the last 6 months of the pregnancy.
The full effect of maternal use of methamphetamine on the newborn infant is not completely known and there is currently a multi-center study underway to better describe this issue. It is, however, known that the infant may suffer intrauterine growth delay and is usually smaller than the norm at birth. Some of these infants have withdrawal symptoms and a recent study showed that about 4% of that study of methamphetamine-exposed infants needed treatment for withdrawal. Newborns that were exposed to methamphetamine in utero are frequently very sleepy for the first few weeks after birth, often to the point on not waking to feed. After this time, the infants behave more like a cocaine-exposed infant and are often jittery, irritable and have a shrill cry. Infants may have irregular sleep patterns, poor feeding, tremors and increased muscle tone. These infants may also have a poor ability to habituate or self-regulate, especially under stressful situations. Therefore, if their environment is noisy and chaotic, the infants do not tolerate it well and can become even more irritable.
Finally, these infants are known to be at increased risk for SIDS, viral hepatitis (such as Hepatitis B and C), and HIV.
What are the possible areas of concern for children who may have been exposed to meth in the womb, and after they are born?
Health Conditions of Drug-exposed Infants
Birth weight: Birth weight is an important factor associated with children's overall health and development. Children who weigh under five-and-one-half pounds at birth are more likely to have serious medical problems and to exhibit developmental delays. Drug-exposed infants often do not exhibit normal development.
Prematurity: The risk of prematurity (birth at less than thirty-seven weeks) is higher in drug-exposed infants. Other complications can include an increase in acute medical problems following birth, and extended periods of hospitalization. Birth weight under three pounds has been associated with poor physical growth and poor general health status at school age. Low Birth weight infants also have an increased risk of neurosensory deficits, behavioral and attention deficits, psychiatric problems, and poor school performance. Premature infants may have experienced bleeding of the brain tissue, hydrocephalus, bronchial problems, eye disease, and interferences with the normal ability to feed.
Small for Gestational Age (SGA): This term is used to describe infants whose Birth weight is below the third percentile for their gestational age (i.e., 97% of infants the same age are heavier than the SGA infant). It is common for women who abuse cocaine to experience decreased appetite and provide inadequate nutrition for themselves and their baby.
Failure to Thrive (FTT): Infants who were exposed to alcohol and/or drugs may exhibit this disorder, which is characterized by a loss of weight, or slowing of weight gain, and a failure to reach developmental milestones. This can be due to medical and/or environmental factors. The infant's behavior includes poor sucking, difficulty in swallowing, and distractibility. Many of these children live in chronically dysfunctional families which places them at greater risk of parental neglect.
Neurobehavioral symptoms: Within seventy-two hours after birth, many infants who were exposed prenatally to drugs experience withdrawal symptoms, including tremors and irritability. Their skin may be red and dry; they may have a fever, sweating, diarrhea, excessive vomiting, and even seizures. Such infants may require medication for calming. Other infants exposed to stimulants show a pattern of lethargy during the first few days after birth, are easily overstimulated, and may go from sleep to loud crying within seconds. These behaviors usually decrease over time and subside in toddlerhood.
Infectious diseases: Infants with prenatal drug exposure may be exposed prenatally or postnatally to infectious and/or sexually transmitted diseases contracted by their mothers. The most common infectious diseases seen in infants are chlamydia, syphilis, gonorrhea, hepatitis B, HIV, and AIDS.
Sudden Infant Death Syndrome (SIDS): Children who have been exposed prenatally to alcohol and/or drugs have an increased risk of dying from sudden infant death syndrome. The causes of SIDS are unknown and its occurrence is almost impossible to predict. Apnea/cardiac monitoring is recommended for these infants.
Fetal Alcohol Syndrome: Mothers who consume large quantities of alcohol during pregnancy may have babies who are born with Fetal Alcohol Syndrome (or FAS). A diagnosis of FAS is based on three factors: 1) prenatal and postnatal growth retardation; 2) central nervous system abnormalities, and, 3) abnormalities of the face. Many of these children display significant disabilities, learning disorders, and emotional problems as they mature.
Each of the above conditions associated with prematurity or drug exposure has programmatic implications for caregivers; the children who exhibit these conditions are often referred to as medically fragile.
Developmental Outcomes: There are many unknowns involved in trying to predict the outcomes of infants and children exposed to drugs. While we know that there are certain physical problems that may remain with the child, in a structured and nurturing environment, many of these children are able to grow and develop quite normally. A small percentage of children have been found to have moderate to severe developmental problems. But regardless of their health status, all children who have a history of prenatal substance exposure should receive developmental evaluations on a regular basis: at least once during the first six months; at twelve months; and at least every year thereafter until school age. Early identification of social, language, cognitive and motor development problems is essential.
Developmental Patterns in Children Exposed Prenatally to Drugs
Birth to fifteen months: Unpredictable sleeping patterns, Feeding difficulties Irritability, Atypical social interactions, Delayed language development, Poor fine motor development.
Toddlers from sixteen months to thirty-six months: Atypical social interactions, Minimal play strategies.
Preschool children from age three to five: While average preschoolers are beginning to share and take turns, demonstrate language skills, and increase their attention spans in a group setting, the drug-exposed toddler may be hyperactive, have a short attention span, lose control easily, have mood swings and problems moving from one activity to another. These children may also experience difficulties processing auditory or visual information/instructions.School and teenage years: There has not been sufficient research into the long term biological effects of drug exposure on older children and teenagers; however, we do know that children with the behaviors described above are at greater risk of abuse and neglect, learning disabilities, and behavioral problems. Obviously, it becomes imperative to identify these problems at a very early age, access the necessary resources for the child, and build a team of professionals who regularly monitor the progress of each child.
Supporting a drug-exposed child in the course of his life may require advocating vigorously for specialized educational services; providing recreational and employment opportunities that allow a measure of success; educating parents; and providing counseling.
Techniques in Working with Drug-exposed Infants and Young Children:Respite and crisis care programs working with drug exposed infants and children may not know the exact drugs to which each child was exposed. A combination of substances, including alcohol and tobacco, may be involved.
There are a few techniques, however, which can be used in a general plan of care that may be individualized to meet the specific problems of each child:
1. Provide a calm environment: low lighting; soft voices; slow transition from one activity to another.
2. Be aware of signs of escalated behavior and frantic distress states before they occur, e.g., increased yawns, hiccoughs, sneezes, increased muscle tone and flailing, irritability, disorganized sucking, and crying.
Use calming and special care techniques on a regular basis, such as:
1. swaddling blankets tightly around the infant.
2. sing a pacifier even when the infant is not organized enough to maintain a regular suck.
3. rocking, holding, or placing the infant in a swing, or Snuggly™ carrier.
4. massaging the child.
5. bathing in a warm bath, followed by a soothing application of lotion.
6. rubbing ointment on diaper area to prevent skin breakdown.
7. encourage developmental abilities when the infant is calm and receptive using only one stimulus at a time. Look for signs of infant distress and discontinue the activity if this occurs.
8. gradually increase the amount and time of daily developmental activities; encourage the child to develop self-calming behaviors and self control of his own body movements.
Behavior Descriptions and Suggested Strategies.
Feeding problems: Feed the baby more often; feed smaller amounts at one time; allow the infant to rest frequently during feeding. Place the infant upright for feeding; after feeding, place the child on his side or stomach to prevent choking; if vomiting occurs, clean the skin immediately to prevent irritation.
Irritability/unresponsive to caregiver: Reduce noise in the environment; turn down lights; swaddle the infant: wrap snugly in a blanket with arms bound close to the body. Hold the infant closely; put the infant in a bunting-type wrapper and carry it close to your body. Rock the infant slowly and rhythmically, either horizontally or with its head supported vertically, whichever soothes. Place the child in a front-pack carrier; walk with the infant; offer the infant a pacifier or place it in an infant swing.Goes from one adult to another, showing no preference for a particular adult: Respond to specific needs of child with predictability and regularity.
May have poor inner controls/frequent temper tantrums: Use books, pictures, doll play, and conversation to help the child explore and express a range of feelings.
Ignores verbal/gestural limit setting: Talk the child through to the consequence of the action.
Shows decreased compliance with simple, routine commands: Provide the child with explicitly consistent limits of behavior.
Exhibits tremors when stacking or reaching: Observe the child and note the onset of tremors, their duration, and how the child compensates for them; provide a variety of materials to enhance development and refinement of small motor skills, e.g., blocks, stacking toys, large Leggos™, and puzzles with large pieces. Sand and water play are soothing and appropriate.
Unable to end or let go of preferred object or activity: Provide attention and time to children who are behaving appropriately; provide child with an opportunity to take turns with peers and adults.
Delayed receptive and expressive language: Create a stable environment where the child feels safe to express feelings, wants, and needs; use stories/records/songs; use hands-on activities to reinforce the child’s language abilities.
Expresses wants, needs, and fears by having frequent temper tantrums: Remove and help calm the child; redirect the child’s attention; verbalize the expected behavior; reflect the child’s feelings. Praise attempts toward adaptive behavior. Set consistent limits.
Difficulty with gross motor skills (e.g. swinging, climbing, throwing, catching, jumping, running, and balancing): Provide appropriate motor activities through play, songs, and equipment. Offer guidance, modeling, and verbal cues as needed.
Over-reacts to separation of primary caregiver: Offer verbal reassurance; be consistent, and help the child learn to trust adults.
Withdraws and seems to daydream or not be there: Provide opportunities for contact; move close to the child, make eye contact, use verbal reassurance; allow, identify, and react to the child’s expressions of emotions.
Frequent temper tantrums: Understand that a tantrum is usually a healthy release of rage and frustration; protect the child from harm; remove objects from the child’s path if he is rolling on floor. Some children do not want to be held during a tantrum and doing so can cause more frustration. Remain calm, using a soothing voice; anger will only escalate the child’s frustration. Do not shout or threaten to spank the child–the adult needs to be in control. Help the child to use words to describe emotions. Read stories about feelings. Help the child gain control by making eye contact, sitting next to the child, giving verbal reassurance, and offering physical comfort (rubbing back, etc.). Note the circumstances that provoked the tantrum, and try to avoid such confrontations when possible. Provide a neutral area for the child to work through the tantrum, (e.g., a large cushion or bean bag chair). Some children want to work through a tantrum alone; keep the child in sight, but do not interact until he is calm.
It is critical to the success of the drug-exposed infant that the eventual caregiver (parent, relative, foster parent, respite provider, adoptive parent) learn the care routine, control techniques, and background of the children for whom they will be providing care. Understanding the etiology of drug-exposure, the types of medical problems that arise, the developmental patterns, and the techniques for handling drug-exposed infants and toddlers is imperative.Program social workers, case managers, child care staff, and nursing staff must all work together with the caregiver to offer parent education (“hands-on” opportunities to provide care under the guidance of professionals), and encouragement for families who undertake the care of a drug-exposed infant. The caregiver’s understanding of the child’s behavior, physical “cues,” and developmental problems, goes a long way in helping the drug-exposed infant, toddler, and teen succeed. It also assists the caregiver in setting realistic expectations for children who enter the world battling the effects of their parent’s addiction. Many children who were prenatally exposed to drugs will grow and develop without unusual problems. However, for those infants who have physical indicators, the respite and crisis care provider can make a difference by providing, perhaps, the first stable, nurturing environment. Here, the child can be observed, positive routines for care can be established, and parents can receive the critically necessary education and support to enable them to care for an alcohol or drug-exposed child.
Summary: Staff training, caregiver training, and parent education are all critical elements of any program that will be successful with these children. Physical elements of the environment (lighting, noise, and space) may need to be adjusted to accommodate their care. The inclusion of medical support, i.e., nurses and physicians who are familiar with the problems of these children, is essential. In summary, the care of alcohol and drug-exposed children is a team effort that requires coordination, case management, special care techniques, and education to be successful in any respite or crisis care situation. With these components in place, agencies and families can witness the positive growth and development of children who have been greatly at risk.